Monday, December 05, 2011
Wednesday, November 16, 2011
le nerve pain. I'm home today after three nights in the hospital where they found little cause besides two bulging disks. This cannot explain the fever, chills and stomach pain. I would appreciate prayers to help us find a doctor who will champion my case through the medical system. A cure would be wonderful. I want to play with my children.
These are the most recent photos of the kids: A trip to the pumpkin farm where I could barely hold it together to take photos. Their costumes on our front porch. I thank God for our wonderful children who give us such joy. No one will get me back to the hospital again where I am separated from them.
God bless and please send your prayers up to God to aleviate our suffering.
Sunday, September 11, 2011
I gotta say that watching five-year-olds play soccer is a bit like watching small fish swarm around a hunk of brine shrimp. They swim around the ball in a small pack, bumping into each other and the ball until someone falls down or the ball goes into the net (or out of bounds). Beth managed to keep herself out of the melee either because she has been watching Elliott play or she has a stronger sense of survival than the other girls!
She is number 9 in the white uniform (with the short blond hair). She is also one of the smallest in the group. There are two versions of the video here: a longer 2-minute video showing some of the game before her goal, or the 50-second version showing only the amazing feat and Beth's smile of satisfaction afterward.
Nice job, Munchkin!
Thursday, September 01, 2011
I've been working on the book about Beth so she would truly understand the miracles surrounding her life. My original intent was to save it just for her. But, in the course of writing, wondered if the world needed to know how God saved her life. There is no doubt in my mind that Beth is here because God intervened.
My book title is Saving Beth. (Yes, I've vacillated between The Heartbeat Within and Saving Beth.) I submitted three chapters to the writing conference and was stunned to learn that I won the nonfiction award! For the first prize, Karen Ball (writer, agent, editor extraordinaire) will read my manuscript and edit it! I am thrilled with this opportunity because of the chance to learn and hone my craft. Whether or not Saving Beth moves into the public view, it will be a treasured keepsake for Beth (and Elliott, too).
I'm letting this project move through any open doors God sets before me. It feels odd to apply my PR talents to promoting my book. Yet, if this opportunity opens yet another door, I might be in the full PR/marketing mode on my own behalf. It could be fun to promote my own project for once!
Tuesday, August 30, 2011
We will miss all the Joy of Children teachers (but we are thankful they are a few blocks from our house so we can stop by frequently).
Wednesday, July 13, 2011
I wonder if any other parents of super-readers have thoughts about Kindergarten? I'd like to know if your child was bored silly or if it was just plain fun to be in Kindergarten anyway.
When I think back to the fears we had when Beth was in the NICU, it seems odd to be where we are now. Anything could have happened during those dangerous days. And yet, by the grace of God and excellent medical care (probably some good genes, too), she is smart, beautiful and healthy.
Save the date: Friends of NICU fundraiser, the Celebration of Miracles is on Saturday, November 5.
Thursday, June 09, 2011
We had a fabulous time: first trip for Beth to the islands. We took her up to 8,000 feet elevation near the top of Haleakela. I've had altitude sickness there on previous trips so we didn't want to go to the very top. Beth was a little nauseaus at 8K and so was I. In all other ways, she seemed fine up so high. This is just one more example that her little lungs are extremely NORMAL despite the NICU interventions. At the ranger station at 8K feet, we saw two families with infants. Mike and I were nearly panic-stricken for them. I know that most babies should be able to handle the altitude without any problem but we couldn't help but be worried for them. We wouldn't have dreamed of taking Beth to such heights when she was an infant. Guess you have to witness the struggles of a baby on a respirator to worry about these things.
Beth stricking a pose on the beach.
Elliott boogieboarding on a BIG wave day (Mike sprained his ankle on a big wave when getting slammed into the beach).
Sunday, May 01, 2011
Wednesday, April 06, 2011
He's been spending an hour a day on the guitar! In fact, I have to pull him off of it in the morning to get him to school. He is also happier about playing his acoustic.
He has taken his acoustic to school to play the theme from Titanic. Below are two videos of him "jammin" with dad. My advice for moms having trouble getting their kid to practice on a musical instrument, get something electric that makes weird and LOUD noises!
Tuesday, March 15, 2011
Friday, February 18, 2011
An inexpensive drug therapy far surpassed a conventional laser procedure in fixing a leading cause of blindness in babies born prematurely, according to a new study.Beth only had a "watch" in one eye even after being on oxygen for 2 months and intubated/CPAP on-and-off for a month. What a relief to know that there could be an effective alternative to eye surgery. See the entire article at the WSJ. This link will only be active for seven days. After that, go to WSJ and search on the article title.
The results of the study, to be published this week in the New England Journal of Medicine, were so significant that the 15 hospitals participating in the research have stopped using lasers in favor of the drug...